Our friend Tara River sent in these pictures for us to show off to you! An article in her local India newspaper talks about Chronic Lyme Disease. 

Karen Smith, co-founder of Global Lyme & Invisible Organisation will be speaking at the Senate Inquiry for Lyme / Lyme - Like Illness in Brisbane on Friday 15th April 2016.

On behalf or Lyme Australia Recognition & Awareness and Global Lyme & Invisible Karen has been allocated 45minutes to speak. (8.45-9.30). Karen will be opening the allocated time slot and presenting her research on Lyme & vector borne diseases to the Senate Inquiry.

Matt Chatt will closing with a presentation on behalf of all those who have lost loved ones, and all those who are living with Lyme & Co.,  The Time to Recognise Lyme’ Clock project aims to show the human side of this disease and the devastation its denial and lack of treatment and medical care is creating.

Time to Recognise Lyme Clock

Call to Action: Acknowledgement & Treatment Can Restore Hope & Health

Sarah Knights: Victoria: Age: 23. Health decline began in 2005, at the age of 12.
Since 2005 Sarah’s health has been up and down. A severe downturn in 2014 saw her lose the use of her legs. Doctors had no idea what was wrong and she was told to ‘get used to life in a wheelchair’.
Sarah was diagnosed with Lyme & Co. early in 2015. After intensive treatment she has slowly regained the use of her legs (on ‘good days’). She still has a long way to go to fully restore her health, but that opportunity is now there: made possible with a diagnosis and knowing what to treat.

Before More Lives Are Devastated By Illness

Janine Mieni: New South Wales. Age:  27.  Sick for 16 years: Since the age of 11.
Presented to ER and admitted to hospital numerous times.  Diagnosed with Lyme & Co. in 2014

Dave Main: South Australia. Age: 39 Tick Bite: Queensland 2008.
Diagnosed with Lyme & Co. in May 2012, as were his wife and twins later that year. 

Amara Campbell: Queensland. Age: 38 Sick for 15 years .Initially diagnosed with ME/CFS in 2001
In 2010 health deteriorated dramatically and became housebound: Diagnosed with Lyme & Co. 2013

Or Lost Forever

Karl McManus: New South Wales: Age: 43: 16th September 1966 – 14th July 2010
Bitten by tick July 2007, Northern Beaches, NSW: Diagnosed with Lyme & Co. 2008

Theda Myint:  Western Australia:  Age: 37:  2nd January 1976 - 25th July 2013
Multiple tick bites WA. Sick 14 years: Most of those years housebound: Diagnosed Lyme & Co. 2011

Bevan Jeffries: Western Australia: Age 44: August 13th 1970 – 25th of February, 2015
Tick bite near Kojonup, WA. Over 6 years of illness: Diagnosed with Lyme & Co. 2014

Bryce Nettle: Western Australia:  Age: 25:  3rd October, 1990 – 17th November 2015
Collapsed in 2009 due to ‘unknown’ illness: Diagnosed with Lyme & Co. 2014

Scott Chant: Queensland:  Age: 32:  4th August 1983 – 8th February 2016
Tick bite - Myocum NSW August 2012: Diagnosed after finding a Lyme Literate doctor later that year
 
**********************************
Time to Recognise Lyme Clock: A Project on behalf of those who have lost
loved ones, as well as all who are living with Lyme & Co.

Clock Concept and Design: Karen Smith: Co-Founder:
Global Lyme & Invisible Illness Organisation: International Red Shoe Day - A Day of Remembrance.
A huge thank you to Sherryn Jackson for her patience and help with the numerous drafts to
bring the clock project to completion.

Canada

• Fredericton Lyme Disease Demonstration​

France

• Lyme Protest" à Toulouse
• Lyme Protest" à Lourdes
• Lyme Protest" à Alençon
• Lyme Protest" à Grenoble
• Lyme Protest" à Besançon
• Lyme Protest" à Strasbourg
• ​Lyme Protest Orléans 2016
• Lyme Protest Pontarlier 2016
• Lyme Protest Lille 2016
• Lyme Protest Manosque 2016
• Lyme Protest Limoges 2016
• Lyme Protest Alençon 2016
• Lyme Protest Albi 2016
• Lyme Protest Rodez 2016
• Lyme Protest Rennes 2016
• Grenoble 2016, Journée contre la maladie de lyme
• Lyme Protest Annecy 2016
• Lyme Protest Foix 2016
• Lyme Protest Paris 2016

Germany

• Hamburg, Germany https://www.facebook.com/events/1664193820510655/
• Berlin, Germany: https://www.facebook.com/events/1690823301206618/

Hungary

• Hungarian Lyme Even (Protest) will be held on 21th of May in Budapest (our capital): The details will be uploaded continously. The event can be found on their Facebook Page: I. Lyme betegek országos találkozója

London

• UK protest arranged for the 24th May in Parliament Square in London. From 11 am until about 2 pm.

​United States

• Ticked Off Art: Where: Minnesota May 5 – May 31
• The Mayday Project 3 Rallies will be held in Washington DC, Arlingtonm VA,  and Atlanta Ga. 
• Washington Annual Awareness Protest

​

If you are in Brisbane : Scott’s funeral service is being held on Thursday the 18th of February, 11am at Albany Creek Memorial Park.  Scott’s family has welcomed those that wish to come and pay their respects to do so. 
They have mentioned:  “We would like his funeral to be a celebration of Scott’s life so please feel welcome to wear colour and whatever you are most comfortable in. There will be a donation box at the service for anyone wishing to contribute to the Lyme Disease Association of Australia.

For those of you wishing to celebrate Scott’s life following the funeral, we have reserved an area at the Eaton’s Hill Hotel from 12.30.

Scott was a much loved and respected member of the Australian Lyme community. The compassion, generosity of spirit and thoughtfulness he showed to others in the community was amazing, and his loss has been profoundly felt. We can only imagine that the loss would be felt a hundred fold by those that were proud to call him a son, brother, uncle, friend.

Scott fought for recognition and treatment of Lyme Borreliosis in Australia. He had high hopes that the science would "see the truth revealed". Sadly Scott's determination to see Lyme recognised and his love of life and his family was overshadowed by his need to escape his constant pain, and he is now another Australian fighting this battle to gain his angel wings far too soon.

Thoughts with Scott's family, friends, all those that knew and loved him at this extremely sad time <3

Facebook "Event Page" : Remembering Scott Chant

What a great year it was for many children and families  on the 2015 Holiday Wishlist. Many wishes were granted this, sadly not all, but many. Most of the children's wishes were granted and there were some very happy pictures to show it! 

We would like to thank those who donated gifts, gifts cards and cash donations to these families. Very special memories were made All but one, wished to remain anonymous publicly so we won't list names of those who helped, just know we are so thankful, and most important the families and children appreciate your support. 

Giving is not just about the gift you are giving, it's about giving someone hope. Reminding someone that somebody cares about them. Thank you for offering that to someone this year. 

Next year we plan to do things a bit differently. We would like to put together gift packages that we can send out to age appropriate children instead of having families ask for specifics. If you are a crafter, and would like to donate an item or if you would like to send us small gifts, toys, or gift cards, we are going to start fillnig boxes now to send out for next year. Please contact us here to start sending us gifts. 

If you have more pictures you'd like to share please send them to us here and we will include them here. Contact us on Facebook.