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Global Lyme & Invisible Illness Organisation
Video's on this page are those submitted by patients from the countries starting with A - E (Listed immediately below) for Lyme awareness



Worldwide Lyme Protest Awareness Video's

In February, Minnesota teenager , Jessica Elizabeth suggested telling - or rather "showing" the Lyme story through pictures and video's. Jessica wrote:  "I think we should flood the internet with not only facts about Lyme but who we are... everyone calls Lyme an 'invisible illness' but we aren't invisible. A video of photos of you or  loved ones holding up a sign saying they are awareness or they support awareness and where you are from would make a big impact. People care more when they see faces and something personal vs. numbers and statistics".

Janice Foster from Australia jumped on board with this idea, and expanded it to include a little more of the Lyme patients story (Eg: I am, I have lost, I want).  The response to the Australian videos was enormous, and many countries followed suit and put together a video to showing the faces of Lyme in their country. 

See below for Australia's video's - of which the short "highlights" video has so far had over 3000 views. Links to the other countries video's will be put up as time permits.
Picture
Jessica's Blog: http://fightlymes.com/

Australia's Video Campaign
"As part of Australia’s campaign to promote the Worldwide Lyme  protest, supporters of our Facebook page were asked to take photos of themselves with signs completing the following sentences:
 
“I am…”
“I’ve lost…”
“I want…”

It was hoped that these photos, when compiled into a video, would give an insight into ‘Lymie life’, without putting the strain of ad lib discussion on participants. 

Fellow Lyme patient, and talented vocalist/musician Emily Madden, volunteered to compose and perform a song, especially for the video’s soundtrack.
 
We had anticipated receiving photos from approximately a dozen  people, but ended up with contributions from over 70, totalling more than 230 photos! It seems we had misjudged the need of Lyme sufferers and their loved ones to be heard.

As a result, the decision was made to release four videos –one to feature general highlights, and the others to cover the topics of “I am…”, “I’ve
lost…” and “I want…”. Despite her preparations to fly overseas for Lyme
treatment, Emily accommodated the project by providing us with a further four original songs.

We would like to thank all everyone involved – participants, receptive audiences and Facebook ‘likers’ and ‘sharers’, for the part you have   played in communicating the situation faced by Australian Lyme patients every  day.

A big thank you also to Janice Foster and Ryan Hollings for taking the time to put these video's together. 

 
Worldwide Lyme Protest Australia : General Highlights

Worldwide Lyme Protest Australia :
I AM


Worldwide Lyme Protest Australia : 
I've Lost


The poignant photos submitted by patients and families were printed out and presented to Federal Chief Medical Officer, Professor Chris Baggoley. 

Picture















Jacqui van Teulingen (Lyme Disease Association of Australia) presenting Professor Chris Baggoley with the folder of  pictures of Australian Lyme Disease patients at the First International Tick Borne Conference (hosted by the the Karl McManus Foundation) in Sydney, March 2013.


Worldwide Lyme Protest Australia : 
I Want
Picture
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