- Australia Protest to demand better testing and doctor training.
May 1st 11 - 2
Old Palace Yard, Westminster SW1p 3JY
Contact: Lorraine Hollens Damonte
New Lyme Documentary, “S.O.S”
There is a team of people working on a new documentary in the Netherlands. It is titled, “S.O.S.” regarding the perils of Lyme disease. This documentary will include patients, doctors and celebrities.
Included in the documentary will be the most serious aspects of Lyme disease such as paralysis, blindness, misdiagnosis and lack or acknowledgments by insurance companies and the medical community. They will also be touching on sensitive subjects such as parents being accused of Munchausen Syndrome, euthanasia, welfare issues and misdiagnoses. Patients will be interviewed as well as Dutch experts and international physicians such as Dr. Burrescano, Dr. Klinghardt and Dr. Schwarzbach.
We would like to get others involved in this documentary. If you know of any celebrities or other Lyme doctors that might be intrested, can you contact Desi at: email@example.com
Please learn more about this important Lyme disease documentary here: Website: www.lymeepidemie
Dutch Facebook Page: https://www.facebook.com/LymeEpidemie/
Karen Smith does an interview with the Daily Mercury and talks about her need to relocate temporarily in order to heal. Patients with Lyme diseese sadly have to deal with neurological symptoms such as sound, light, heat and smell sensitivity. Needing a calm and cooler environment Karen talks about the need to relocate, her ongoing educational Lyme awareness efforts, her educationg and more.
Please read the following article on Karen here:
Lyme disease crusader leaves Mackay but vows to keep fighting
Left: Prime Minister Malcolm Turnbull with Mackay Lyme disease advocate Karen Smith.
Lyme Picnic Heard Around the World
Click on this following link to see if there is a picnic being planned near you this summer or Fall!
Travels Through Lyme Disease UK
This month’s guest blog is by Natasha Metcalf who with Louise Dean, co-founded Lyme Disease UK. Natasha reflects on how LDUK began, what the group has taught her as well as her personal journey with the illness.
US state, Delaware Passed two Lyme Bills!
Delaware upped it’s standards for Lyme disease care this month when Gov. Jack Markell (D) signed two bills into law.
Learn more about the two bills here.
Problems with current UK care for “tick sick” patients
From Caudwell Lyme Disease
If you have something Lyme/Borrelisosis relevant happening in your country let us know and we will post it for you.
Hello everyone! As we are getting closer to Red Shoe Day we would like to remind everyone to dust off their red shoes and health permitting, organise a casual gathering to remember those we have lost. Red Shoe Day is not only to remember friends and loved ones passing, it is also to celebrate their lives, and to remember and share the wonderful memories their time on this earth gave us.
This year, as well as wearing your red shoes or organising a ‘get together’ (whether that be a gathering at the beach, having a BBQ, or even a small morning tea at home), we would also like to ask you to write to your local newspaper to invite them to print a story about, ‘Red Shoe Day: A Day of Remembrance’. Below is an introduction to Red Shoe Day that you can copy for the beginning of your article. Please be sure to add in your personal story, and why you are wearing Red Shoes, so that the newspaper will see how this is relevant to them locally. Let us know if your article gets printed so that we can add it to our website!
David Eagleman wrote: “There are three deaths. The first is when the body ceases to function. The second is when the body is consigned to the grave. The third is that moment, sometime in the future, when your name is spoken for the last time.”
Thank you for joining us to prolong the last and final death of friends and loved ones by always speaking their name!
Read More about Red Shoe Day Here:
Join the Facebook Event:
Copy This and Add your Story and Send to Newspapers or Online News Websites
Red Shoe Day: A Day of Remembrance ~ July 25th
On Red Shoe Day: A Day of Remembrance, patients from the invisible illness community around the world wear their Red Shoes, and post a picture of them to an online facebook event page, along with their memories and/or messages to friends and families of loved ones lost. A number of people also hold casual get-togethers in order to celebrate the lives and remember loved ones no longer with us. After each event, the pictures and messages that are sent / uploaded o facebook are then added to the website.
Red Shoe Day was founded by Global Lyme and Invisible Illness Organization (GLilo) in memory of Australian Lyme Patient, Theda Myint who left this earth on the 25th July 2013. The Inaugural Red Shoe Day was held on the 25th July 2014, and this day has quickly becoming established as an annual Remembrance Day to remember not only Theda, but all those lost to Lyme and other invisible illnesses - such as ME/CFS, Fibromyalgia - around the world.
In the broad sense of the term, invisible illnesses are those that are generally ‘invisible’, not only from the outward appearance of the person, but also seemingly invisible to appropriate research, treatment and care of the thousands of people that are living with them. Many living with these illnesses are also "invisible" to society, as their health is such that they are confined to their houses (and many to their beds) for months, even years.
The online communities and support groups are a lifeline to many who are unable to leave their beds/houses and the people within these communities/groups understand the struggles and adversity with very little explanation. Finding ‘someone like you’, leads to many friendships being developed, and the loss of someone from this community is felt by many, even those on the other side of the world.
The reason I am writing this article today is that I would appreciate if you could help us bring ‘Invisible into the Light. To remember those our community has lost, as well as give hope of recognition to those who are still fighting for treatment and better health.
I wore/will be wearing my Red Shoes / having a gathering for .... (fill in your story here)
Stop by our Red Shoe Day Shop
You can visit our shop to purchase a shirt with Theda or Chrissy on it , or you can customize one with someone you lost.
What is this?The Lyme Picnic Heard around the World is a get together that Jeff Rainey. Eric Pascal Kind and Lisa HIlton are working on making happen. We thought it would be nice for Lyme friends to all get together for some face to face time. Not to protest, not to raise awareness, but simply for the fellowship and getting to meet some of your online friends.
There is a Facebook group to organize some “get togethers” worldwide for Lyme patients.
Here is a list of all the get togethers by country and state. These are the people who volunteered so far. This list will keep growing so keep checking back in or let us know if you are interested in organizing one!
(We are just getting started so there are no set times or locations yet but we will add them as they get set)
To Learn More Visit Here