On behalf or Lyme Australia Recognition & Awareness and Global Lyme & Invisible Karen has been allocated 45minutes to speak. (8.45-9.30). Karen will be opening the allocated time slot and presenting her research on Lyme & vector borne diseases to the Senate Inquiry.
Matt Chatt will closing with a presentation on behalf of all those who have lost loved ones, and all those who are living with Lyme & Co., The Time to Recognise Lyme’ Clock project aims to show the human side of this disease and the devastation its denial and lack of treatment and medical care is creating.
Call to Action: Acknowledgement & Treatment Can Restore Hope & Health
Sarah Knights: Victoria: Age: 23. Health decline began in 2005, at the age of 12.
Since 2005 Sarah’s health has been up and down. A severe downturn in 2014 saw her lose the use of her legs. Doctors had no idea what was wrong and she was told to ‘get used to life in a wheelchair’.
Sarah was diagnosed with Lyme & Co. early in 2015. After intensive treatment she has slowly regained the use of her legs (on ‘good days’). She still has a long way to go to fully restore her health, but that opportunity is now there: made possible with a diagnosis and knowing what to treat.
Before More Lives Are Devastated By Illness
Janine Mieni: New South Wales. Age: 27. Sick for 16 years: Since the age of 11.
Presented to ER and admitted to hospital numerous times. Diagnosed with Lyme & Co. in 2014
Dave Main: South Australia. Age: 39 Tick Bite: Queensland 2008.
Diagnosed with Lyme & Co. in May 2012, as were his wife and twins later that year.
Amara Campbell: Queensland. Age: 38 Sick for 15 years .Initially diagnosed with ME/CFS in 2001
In 2010 health deteriorated dramatically and became housebound: Diagnosed with Lyme & Co. 2013
Or Lost Forever
Karl McManus: New South Wales: Age: 43: 16th September 1966 – 14th July 2010
Bitten by tick July 2007, Northern Beaches, NSW: Diagnosed with Lyme & Co. 2008
Theda Myint: Western Australia: Age: 37: 2nd January 1976 - 25th July 2013
Multiple tick bites WA. Sick 14 years: Most of those years housebound: Diagnosed Lyme & Co. 2011
Bevan Jeffries: Western Australia: Age 44: August 13th 1970 – 25th of February, 2015
Tick bite near Kojonup, WA. Over 6 years of illness: Diagnosed with Lyme & Co. 2014
Bryce Nettle: Western Australia: Age: 25: 3rd October, 1990 – 17th November 2015
Collapsed in 2009 due to ‘unknown’ illness: Diagnosed with Lyme & Co. 2014
Scott Chant: Queensland: Age: 32: 4th August 1983 – 8th February 2016
Tick bite - Myocum NSW August 2012: Diagnosed after finding a Lyme Literate doctor later that year
Time to Recognise Lyme Clock: A Project on behalf of those who have lost
loved ones, as well as all who are living with Lyme & Co.
Clock Concept and Design: Karen Smith: Co-Founder:
Global Lyme & Invisible Illness Organisation: International Red Shoe Day - A Day of Remembrance.
A huge thank you to Sherryn Jackson for her patience and help with the numerous drafts to
bring the clock project to completion.